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POSITIVE OUTCOMES: Improving Quality

King's College London · 2026
ClinicalTrials.gov · Datasets · License: Public Domain · 2026
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hivimplementationpatient-reported-outcome-measurespatient-reported-outcomesperson-centred-carequality-improvement
People Living with HIV (PLWH) in the UK have a high burden of mental health, social and spiritual concerns, physical symptoms, and poorer health-related quality of life than the general population. PLWH feel that routine clinical appointments do not routinely address the things that matter to them, with implications for their engagement and outcomes of treatment and care. Contrastingly, good psychosocial care and communication with HIV professionals are associated with improvements in clinical outcomes, adherence and retention in care. Although HIV service structures, processes and outputs are routinely audited, it is person-centred patient-reported outcomes that define quality care. We have established a stakeholder project team, conducted community consultation and undertaken careful research-led development of a PROM for PLWH (called "POSITIVE OUTCOMES". This PROM has been developed in 2 European countries and validated in 5 European countries, using best scientific principles of psychometrics. We have established face and content validity, conducted cognitive interviews, and demonstrated validity and reliability in a sample of N=1,705 PLWH who completed at least 2 data points (manuscript in preparation). This was conducted alongside a national consultation to develop the new iteration of HIV care standards that includes a standard on "person-centred care" https://www.bhiva.org/file/KrfaFqLZRlBhg/BHIVA-Standards-of-Care-2018.pdf. To meet the requirements in delivering and auditing person-centred care within those standards, we need to answer the following questions: * What are optimal methods for routine implementation of the PROM from the perspectives of stakeholders * What are locally-relevant components of a Decision Support Tool to provide clinicians with appropriate evidence-based clinical responses to patient PROM scores * What is an implementable Quality Improvement Programme to improve person-centred outcomes, informing (inter)national roll out with exi
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