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Pilot Testing of a Co-adapted Group Programme for Parents/Carers of Children With Complex Neurodisability

City, University of London · 2024
ClinicalTrials.gov · Datasets · License: Public Domain · 2024
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acceptabilitycaregivercerebral-palsychildrenfeasibilitynaparent
The goal of this pilot feasibility study is to test a co-adapted community-based group programme ("Encompass") with parents/carers of children with complex neurodisability under 5 years of age in East London in the UK. The main questions it aims to answer are: * Is it feasible and acceptable to carry out this newly co-adapted programme with two groups of parents/carers of children with complex neurodisability under the age of 5? * Is it feasible to carry out an evaluation of the above programme, which could then inform a protocol for larger scale evaluation? The main activities for the parent/carer participants will include: * Attending ten "Encompass" parent/carer groups * Filling in questionnaires at the start and end of the groups * Attending an interview with the researcher to discuss their experiences The groups will be facilitated by a healthcare professional and a parent with lived experience. They will also be interviewed about their experiences after the groups have been completed.
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