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Retinal Detachment Prevention (Laser Prophylaxis) in Stickler Syndrome (SS)

Helen Keller Eye Research Foundation · 2025
ClinicalTrials.gov · Datasets · License: Public Domain · 2025
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laser
The goal of this clinical trial is to prospectively document to what extent the OSC/SS prophylactic laser retinopexy procedure works to prevent retinal detachment in SS in children and adults. Researchers will compare the OSC/SS procedure in SS to the natural progression of SS to see to what extent the OSC/SS procedure works to prevent retinal detachment. Participants will: * Have the OSC/SS procedure in one or both eyes * Have eye tests * Have genetic testing for SS as needed * Visit the study center 9 times over 5 years for checkups and tests * Have data for the untreated fellow-eye collected and used as study data if available
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