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Data for: Identifying and Exploring Solutions to the Ethical Challenges of ApoL1 Testing of Donors with Recent African Ancestry Through Mixed Methods Research with Stakeholders

DuBois, James M.
QDR Main Collection Dataverse OAI Archive · Datasets
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african-americansdecision-makingethicsgenealogygeneticshealth-and-life-sciencesmedicinepatients
Project Overview Blacks in the United States have a higher incidence of end-stage kidney disease than the general population; much, but not all, of this excess risk is attributed to variants in the ApoL1 gene. Individuals with 2 high-risk variants—found almost exclusively in people of We
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