GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)

Name: GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)
Published: 2013
License: Public Domain

Ultragenyx Pharmaceutical Inc · 2013

ClinicalTrials.gov · Datasets · License: Public Domain · 2013

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hereditary inclusion body myopathy, gne myopathy, nonaka disease, quadriceps sparing myopathy (qsm), distal myopathy with rimmed vacuoles (dmrv), quadriceps sparing myopathy, distal myopathy with rimmed vacuoles, ultragenyx, rare disease, observational

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GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)

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