sickle-cell-disease

Documents about sickle-cell-disease

• Supporting the goals and ideals of Sickle Cell Disease Awareness Month.#128973Congress.gov
• Measurement of fatigue in sickle cell disease: a systematic review of fatigue measures#161381HAL (France)
• Efficacy and Safety of Bosentan in Sickle Cell Disease (SCD) Patients Diagnosed With Pulmonary Hypertension (PH)#283142ClinicalTrials.gov
• Efficacy and Safety of Bosentan in Sickle Cell Disease (SCD) Patients With Pulmonary Arterial Hypertension (PAH)#332842ClinicalTrials.gov
• Assessing current non-pharmacologic pain management practices for sickle cell disease in adults.#418209NCBI PubMed Central
• Exercise in Child Health#845349ClinicalTrials.gov
• Comparing Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment—The ENGAGE HU Study#1643NCBI Bookshelf
• Negative Descriptors of Patients With Sickle Cell Disease in the Electronic Health Record.#13541NCBI PubMed Central
• Hemoglobinopathy Nursing Program and Pediatric Nursing Students#800385ClinicalTrials.gov
• Self-Management for Youth and Families Living With SCD - SMYLS#865182ClinicalTrials.gov
• Association between comorbid depression, antidepressant adherence, and disease-modifying therapy adherence among Texas Medicaid patients with sickle cell disease.#327137NCBI PubMed Central
• Parvovirus B19 infections in paediatric sickle cell disease patients: Genotype and hydroxyurea treatment influence disease severity#1028841Bielefeld Pub
• Addition of JSP191 (C-kit Antibody) to Nonmyeloablative Hematopoietic Cell Transplantation for Sickle Cell Disease and Beta-Thalassemia#897552ClinicalTrials.gov
• Mechanism-informed transition from pediatric to adult care in sickle cell disease: a case study.#125492NCBI PubMed Central
• I-STRONG: an integrative, multicomponent treatment approach for chronic pain in pediatric sickle cell disease.#342394NCBI PubMed Central
• Target product profile for formulations of hydroxyurea for the management of sickle cell disease in children#349396World Health Organization
• Outcome of cranial surgery in Nigerian patients with hemoglobinopathies#479742University of Ibadan Institutional Repository
• Dissemination and Implementation of Stroke Prevention Looking at the Care Environment#906221ClinicalTrials.gov
• Glutamine Therapy for Hemolysis-Associated Pulmonary Hypertension#918357ClinicalTrials.gov
• Survey in a Population of Sickle Cell Disease Patients to Evaluate the Transition Between the Queen Fabiola Children Hospital and the CHU Brugmann Hospital, and the Quality of the Hospital Care Within the CHU Brugmann Hospital.#836479ClinicalTrials.gov
• Coordinated HEalthcare for Complex Kids#844711ClinicalTrials.gov
• Multi-Center Study of Iron Overload: Survey Study (MCSIO)#18796ClinicalTrials.gov
• Data Management and Sharing Plan for: Comparative Effectiveness of MRD HCT and NT-DMT for Pediatric Sickle Cell Disease#233742UNC Dataverse Dataverse OAI Archive
• Patient Experiences of Acute Pain Communication in Sickle Cell Disease and Perspectives on Improving Clinician Communication.#255207NCBI PubMed Central
• Effectiveness of preimplantation genetic testing in sickle cell disease: insights from a single-center experience#414974HAL (France)
• Feasibility of Home-Based Computerized Working Memory Training With Children and Adolescents With Sickle Cell Disease.#427764NCBI PubMed Central
• GDF 15 in Sickle Cell Disease and Hereditary Spherocytosis#892564ClinicalTrials.gov
• Multi-Center Study of Iron Overload: Pilot Study#967989ClinicalTrials.gov
• Medication Adherence and Non-adherence in Adults With Rare Disease#909803ClinicalTrials.gov
• Targeting PAR1 biased signaling with parmodulin reduces thromboinflammation and acute lung injury in sickle cell disease.#4033NCBI PubMed Central
• Improving Pneumococcal Vaccination in Adults with Sickle Cell Disease Through On-Site Vaccination and Provider Education: A Quality Improvement Project#168931DigitalCommons@SHU
• A Multidimensional Digital Approach to Pain Assessment in Sickle Cell Disease: A Feasibility Study in Ghana.#193665NCBI PubMed Central
• Kidney function among adult sickle cell disease patients at Ahmadu Bello University Teaching Hospital, Zaria, Nigeria.#285284NCBI PubMed Central
• Adapting a school readiness intervention for children with sickle cell disease: an intervention mapping for adaptation approach.#412096NCBI PubMed Central
• Sickle Cell Disease Demographics and Clinical Epidemiology in Gambian Urban and Rural Cohorts Retrospective Analysis#429603bioRxiv / medRxiv
• Comparing the Effects of Peer Mentoring on Care Transitions in Emerging Adults With Sickle Cell Disease: The ST3P-UP Study#454744NCBI Bookshelf
• Cost-effectiveness of interventions for screening and management of sickle cell disease during pregnancy: A systematic review.#455420NCBI PubMed Central
• Invisible Navigators: Migrant Parents and the Everyday Labour of Managing Sickle Cell Disease in the UK.#796720NCBI PubMed Central
• sPLA2 in EBC During Acute Chest Syndrome#993509ClinicalTrials.gov
• PATient Navigator to rEduce Readmissions#1031556ClinicalTrials.gov
• Using Coding to Improve Executive Functioning in Children with Sickle Cell Disease: A Multiple-Baseline Single-Case Study.#140528NCBI PubMed Central
• Psychometric evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) in pediatric sickle cell disease in Europe.#258352NCBI PubMed Central
• A new method for augmenting short time series, with application to pain events in sickle cell disease.#305209NCBI PubMed Central
• Preliminary Benefits of In-Home Virtual Reality for Chronic Pain in Sickle Cell Disease: Pilot Randomized Trial.#315337NCBI PubMed Central
• Retinal imaging and supervised learning predict hospitalizations and kidney and heart-lung damage in sickle cell disease.#342493NCBI PubMed Central
• Genotype is a predictor of blood pressure variability and relative systemic hypertension risk in sickle cell disease#353183bioRxiv / medRxiv
• Feasibility and preliminary efficacy of the Balance Program to reduce pain-related disability in pediatric sickle cell disease.#427763NCBI PubMed Central
• Complete Blood Count, Vwf, and Adamts13 Levels for Early Detection of Complications in Paediatric Sickle Cell Disease in Kenya#436394Kenyatta University Repository
• "Heartbreak and Frustration'' experiences of healthcare providers caring for pregnant women with sickle cell disease in Uganda.#439219NCBI PubMed Central
• Feasibility and Implementation of a Group Therapy Program for Adults Living With Chronic Pain and Sickle Cell Disease.#452730NCBI PubMed Central