sickle-cell-disease

Documents about sickle-cell-disease

• Feasibility and preliminary efficacy of the Balance Program to reduce pain-related disability in pediatric sickle cell disease.#427763NCBI PubMed Central
• Complete Blood Count, Vwf, and Adamts13 Levels for Early Detection of Complications in Paediatric Sickle Cell Disease in Kenya#436394Kenyatta University Repository
• "Heartbreak and Frustration'' experiences of healthcare providers caring for pregnant women with sickle cell disease in Uganda.#439219NCBI PubMed Central
• Feasibility and Implementation of a Group Therapy Program for Adults Living With Chronic Pain and Sickle Cell Disease.#452730NCBI PubMed Central
• A Research Study of the Effect of Etavopivat on Other Drugs in Healthy Participants#481740ClinicalTrials.gov
• Cognitive Behavioral Therapy and Real-time Self-management Intervention for SCD Via Mobile Applications#847852ClinicalTrials.gov
• The Presence and Percentage of Circulating Nucleated Red Blood Cells Reveal Distinct Characteristics in Adults With Sickle Cell Disease#1039035HAL (France)
• Evaluation of HemoTypeSC as a Novel Rapid Test for Point-of-Care Screening for Sickle-Cell Disease, Hemoglobin C Disease, and Carrier Status in Low-Resource Settings#969425ClinicalTrials.gov
• Novel use of a hash-based tokenization for sharing sickle cell disease data without sharing protected health information.#174694NCBI PubMed Central
• Guidelines for the management of emergencies and critical illness in pediatric and adult patients with sickle cell disease#254233HAL (France)
• Local ancestry-aware genome-wide meta-analysis uncovers novel genetic loci for sickle cell disease nephropathy#319801bioRxiv / medRxiv
• Imatinib and Carvedilol for High Blood Pressure in the Lungs in Adults With Sickle Cell Disease#394644ClinicalTrials.gov
• Mapping the Research Growth and Citation Impact of Scholarly Works on Sickle Cell Disease in Tanzania: A Scientometric Study.#440640NCBI PubMed Central
• IMPACTS Trial: Investigation of the Modulation of Phospholipase in Acute Chest Syndrome#827735ClinicalTrials.gov
• A Study on the Effect of Etavopivat on Heart Rhythm in Healthy Participants#841557ClinicalTrials.gov
• Albuminuria Reduction With Renin Angiotensin System Inhibitors in SCA Patients#845417ClinicalTrials.gov
• YOLT-204 in Patients With Hemoglobinopathies#875646ClinicalTrials.gov
• Evaluation of the Impact of Renal Function on the Pharmacokinetics of SIKLOS ® (DARH)#1047426ClinicalTrials.gov
• Alefacept and Allogeneic Hematopoietic Stem Cell Transplantation#825637ClinicalTrials.gov
• Psychometric evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) in pediatric sickle cell disease in Europe#256182Springer Nature OA
• Immunogenicity and Safety Study of Pneumococcal 7-Valent Conjugate Vaccine in Sickle Cell Disease Infants.#268061ClinicalTrials.gov
• Care Delivery Gap framework: a proof-of-concept patient-reported measure of guideline-referenced care-process omissions in sickle cell disease#369732bioRxiv / medRxiv
• A Pilot Study of HSCT for Patients With High-risk Hemoglobinopathy Using a Nonmyeloablative Preparative Regimen#838797ClinicalTrials.gov
• Bone Marrow Transplantation, Hemoglobinopathies, SCALLOP#994974ClinicalTrials.gov
• Aloimunização eritrocitária na doença falciforme: um desafio transfusional no Nordeste do Brasil#462217Repositório Institucional da Universidade Federal de Sergipe
• 42 U.S.C. § 300b-5 — Sickle cell disease and other heritable blood disorders research, surveillance, prevention, and treatment#594907US Code (LII)
• Prevention of Vaso-occlusive Painful Crisis by Using Omega-3 Fatty Acid Supplements#866791ClinicalTrials.gov
• Functional Outcomes Following Hip Core Decompression in Younger Participants With Osteonecrosis#994501ClinicalTrials.gov
• Peer i-Coaching for Activated Self-Management Optimization in Adolescents and Young Adults With Chronic Conditions#152605ClinicalTrials.gov
• A Phase I/II Trial of Recombinant-Methionyl Human Stem Cell Factor (SCF) in Adult Patients With Sickling Disorders#180314ClinicalTrials.gov
• School absenteeism among children and adolescents aged 6–19 years with sickle cell disease in Uganda: A comparative cross-sectional study.#242467NCBI PubMed Central
• Laboratory indices of hospitalized sickle cell disease patients, prevalence and antimicrobial susceptibility of pathogenic bacterial isolates at MRCG ward in the Gambia#653108LSHTM Data Compass
• Analgesic Effect of Parecoxib Versus Morphine in SCD Patients Presenting to the Emergency Department#843275ClinicalTrials.gov
• Challenges and opportunities in hydroxyurea access and adherence for sickle cell disease patients at Komfo Anokye Teaching Hospital: Insights from healthcare providers.#242548NCBI PubMed Central
• Cerebral blood flow velocities and associated neurocognitive impairment in Zimbabwean children age 1-5 years with sickle cell disease: a cross sectional study#261129African Journals Online
• Assessing the value of fibro scan in the detection of liver fibrosis among patients with sickle cell disease- a single center study.#472525NCBI PubMed Central
• Gene Therapy Communication: Use of a Needs Assessment to Drive Decision-AIDS for Gene Therapy for Rare Diseases (GENETX)#871274ClinicalTrials.gov
• Parent Willingness to Participate in Tobacco Trials in the Pediatric Clinical Setting#993522ClinicalTrials.gov
• Early Developmental Screening and a Home-Based Caregiver Intervention for Infants and Toddlers With Sickle Cell Disease: Protocol for a Prospective Mixed Methods Study.#457486NCBI PubMed Central
• Three-year safety, efficacy, and renal outcomes of mitapivat treatment in sickle cell disease: results from the phase 2 open-label study.#469192NCBI PubMed Central
• Exploring Food Insecurity and Hospitalization in Sickle Cell Disease: An International Pilot Survey of Advocacy Organizations#680783SocArXiv
• Adding Azathioprine/Hydroxyurea Preconditioning to Alemtuzumab/TBI to Reduce Risk of Graft Failure in MSD HSCT in Adult SCD Patients#995257ClinicalTrials.gov
• Self-Management for Youth Living with Sickle Cell Disease (SMYLS): A study protocol for a multisite randomized controlled trial testing a behavioral, mHealth app.#174788NCBI PubMed Central
• Echocardiographic characterization and markers of cardiovascular risk in adults with sickle cell disease in a Colombian tertiary referral centre: a cross-sectional study#200181bioRxiv / medRxiv
• Fertility Preservation in Women Who Will Have Gonadotoxic Therapy or Hematopoetic Stem Cell Transplantation, and in Women With Sickle Cell Disease#994535ClinicalTrials.gov
• Efficacy of Ayurveda Regimen as an Adjunct to Hydroxyurea in Sickle Cell Disease: Protocol for a Prospective, Randomized, Open-Label, Blinded End Point Exploratory Study.#146092NCBI PubMed Central
• Evaluation of the Safety, Tolerability, Pharmacokinetics (PK) and Effects on Liver Iron Concentration of ICL670 Relative to Deferoxamine(DFO).#892978ClinicalTrials.gov
• Exploring Food Insecurity and Hospitalization in Sickle Cell Disease: An International Pilot Survey of Advocacy Organizations#976940OSF
• "Association of Proteinuria and Progression of Kidney Dysfunction in Sickle Cell Disease"Disease#915308ClinicalTrials.gov
• Drépanocytose entre représentations sociales, qualité de vie et qualité de soins : étude comparative entre la France métropolitaine, la Guyane et le Bénin#205808HAL (France)